Wednesday, June 8, 2011

Summer break

Day four of summer break, and so far so good. We've floated stick boats in a stream, been to the zoo, eaten popsicles, visited the library twice, and attended a graduation party among other things. Summer is great, but it always takes a great deal of energy and self-discipline on my part to limit my kids' screen time. This summer that is more true than it ever has been. Not only do we have more screens to watch and games to play, but with one less leg around here--going places and even doing things around the house is a whole new ballgame. Sometimes I win my personal battle with the screen--other days I don't. And then I have one more thing to worry about. How else can cancer stress me out?

Steven's counts dipped down (probably his low was over the weekend), but his white blood count and ANC were up today to a normal range. We've been doing neupogen shots and really, that stuff is a miracle in a syringe. He's been getting more and more upset about them every day, but I keep reminding him how they have saved him from a neutropenic fever twice now. His hematocrit was low and his platelets are currently too low to start another round of chemo. But round eight of chemo doesn't start until Tuesday, and the docs feel confident that he will make counts by then.

In the meantime, we've seen evidence of the dropping counts. Last weekend he got a few mouthsores and the other day he had a nose bleed. He's been kind of tired--which I think the low red counts explain pretty well. He will go from seeming totally normal one day and the next day feeling lightheaded and then we'll do labs and the mystery is solved. Maybe by the end of this, his lab results will stop surprising me.

In other news, the CureSearch plans are moving along. Thanks to Rob's amazing company and co-workers we have totally surpassed my fundraising goal. As cool as that is, the more the merrier. We still need walkers, too. I guess this is the first CureSearch walk in Salt Lake. From the bit of research I've done on CureSearch, I am really impressed by what I've read. They truly are making a difference with the money they raise. There is an interesting article in that you can read here. The article talks about the excessive amounts of cancer non-profits and how some are poorly run and not making much difference in research. CureSearch uses over 95% of the money earned for research--you can check it out at Charity Navigator. We'd love to have any of join us July 9th! Go to Team Steven to register to walk or to donate. Thanks to all who have donated so far!


  1. I hope his counts come up. And your walk sounds great.

  2. Sonja, I think you're really good about not just letting your kids watch screens all day. You guys are always doing fun stuff and serving people.

  3. The battle with the screen continues here too. I think I'm losing most of the time. The TV isn't the problem here, it's more computer games. We do have some fun things planned next week. Maybe it will be better.

    I can't come to the CureSearch walk, although I would LOVE to. We have a Dickey family reunion in the mountains that day, but I can donate. What a great charity! If charity navigator loves it, it must be a good one. The know that stuff.

    Love you guys.

  4. Hi Steven
    My name is Jenna and i came across your site. U are a courageous, strong and determined fighter. U are a brave warrior, smilen champ, super trooper and an inspirational hero. I was born with a rare life threatening disease. I love it when people sign my guestbook.