So a nutritionist came in today and is worried about Steven's weight. This is a long story but you can imagine that we are having a hard time keeping his weight up. The nausea with the cisplatin lasts a long time and he has basically gone on strike agaainst hospital food. Then when he has mouth sores, he eats very little. I have been feeling good about his weight this week and was sure he would have at least maintained it from a few weeks ago. Last week he ate things like a full lasagna dinner with French bread and then two servings of brownie with ice cream and homemade fudge sauce or sausage and a waffle and whole milk for breakfast. I make him a smoothie everyday with ice cream, fruit, full fat yogurt, whole milk and carnation instant breakfast. Granted, he won't usually finish the smoothie, but I do try. A very big problem is that chemo is killing his taste for some of his favorite foods like peanut butter and hamburgers. I am certainly trying, but maybe I've relaxed a little too much.
Maybe that is why I felt a little offended when the nutritionist asked me what was going on and if I knew about calorie packing. Steven tried to take a stand. When she brought up his weight loss he said, "Well, I did just lose a big part of my knee, that must have been some of my weight.". She countered with the weight of the cast, and he couldn't argue that one. We talked about some ideas and she asked me if he liked bagels. He did, but who knows now. Let me tell you a story about last night to prove that I will go to great lengths to feed my child.
At 4.30 yesterday, he was still getting hydrated before chemo started and he was hungry. All he wanted was a blueberry bagel and he refused to eat one from the hospital. I looked up Einstiens and drove to it. I got there at 5:05. It was closed. A customer on the patio thought the one by the university might be open longer, so I headed there. It was closed too. I was now in 5:00 traffic looking for a bagel. I went to a bakery and they were all out. I spent $10 on other things to try to tempt him. I headed back to the hospital and decided to buy a bagel from the hospital cafeteria just in case. Guess which one he ate? The hospital bagel. That was at 6:00 and by 8:00 he was barfing the bagel. Now we have strengthened his hospital food association and possibly ruined bagels for him. And I feel like crying just thinking about the whole thing.
And I have got to go hunt down a Wendy's 10 peice chicken nugget for him now. You may argue that I am spoiling him and maybe I am. But at least I can look the nutritionist in the eye and honestly say I am doing my very best.