Friday, May 20, 2011

School

I've been trying to get Steven up to school this week, just so the kids could see him and he could feel their support despite his new look. We finally agreed on this afternoon--right before school let out. As the time drew nearer, he was getting pretty anxious. He reluctantly got in the car and off we went. We drove up to the school just as his class was coming in from recess. His friend saw him in the van and showed the other kids and they were so excited, they were practically cheering. He just lit up and wanted out of the van as fast as he could. I think it was still awkward when we first walked in, but he did it and I think it was a huge boost for him. Some of the kids signed his cast, he's got quite the collection of autographs now.

I've spent the week trying to make progress in many areas of life, but mostly I've been researching prosthetics and prosthetists. I've spoken with amputees and rotationplasty families. I'm getting closer--I've got a consult with a highly recommended prosthetist on Monday. I've spoken with a prosthetist who has fit many rotationplasty patients (and is one himself). Sadly, he lives in Georgia, but he is willing to work with whomever we choose. One thing I have decided is that having a good leg is going to be essential in getting Steven active again. Now to figure out who will make the best leg.

Steven starts chemo again on Tuesday. It's so soon! But we can't give the cancer a break. As oppressive as it seems, it is our ticket to life so we will show up.

13 comments:

  1. Tuesday does seem soon! But I'm glad Steven got to see all his friends at school. That is awesome.

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  2. I'm glad to hear you're all hangin' in there. Thanks for keeping us all updated!

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  3. If you need to come to GA, you have a place to stay!!!!

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  4. I'm so glad school turned out to be a positive experience. I will be thinking of you guys next week as you get started again with chemo. It's hard to have a little break then have to go back to that but it will be worth it in the end.

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  5. I was going to fly out there just to sign his cast. But it sounds like there's not much room left...

    So I wish you didn't have to turn around and head right back in for chemo! But we're so happy to hear how well Steven's been recovering from surgery. Pretty sure it's because he's amazing.

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  6. Hey, rotationplasy has been highlighted on
    theblaze.com. Maybe you've already seen it, but maybe not!

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  7. Good for you Steven!!! I'm so glad you went to school. Friends are important.

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  8. Steve, what a brave thing to go to your class. I am thoroughly impressed. Hearing you did that so soon makes me want to be more like you and face my own fears.

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  9. So happy to hear that all is going well. Steven is really an inspiration to us. My kids check the blog every day and are always amazed to see Steven so happy and positive. We continue to pray for him and hope his healing will continue to go so well.

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  10. Uh, wait a minute, was there a age restriction on that cast...I didn't sign it. ;-)

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  11. We are so proud of Steven and think he has a lot of courage. We all love you and are cheering you on! What an amazing family you are.

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  12. Don't worry, Heid, you'll get another chance. He's getting a new one on Tuesday and we'll start over!

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  13. I know you've done a lot of research on prosthetics and prosthesis, but if you have any questions my brother might be able to answer some for you, or at least send you the way of someone you can trust with the answer. He's an OT and has worked on a lot of prosthetics. Just a suggestion in case you need to ask one more person the millions of questions I'm sure are running through your mind! Love ya!

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