Things are good today--Steven was home by 10:00am this morning. We all went to church as a family--a rare thing these days. His labs looked really good. The oncologist that discharged us today looked at his lab results and said, "A perfectly healthy boy." I thought it was kind of weird since, oh yeah, he has cancer.
If it weren't for the hair, I could have almost forgot that fact for most of the day. He was in great spirits and we got to have a big family dinner at Rob's parent's house. By 7:00, he was tired and wanted to go home. I guess waking up every couple of hours for three nights in a row, along with chemo, can wear you down. He is planning to go to school this week and we are gearing up for the big surgery on the 10th of May.
His surgeon called yesterday to set up a time to meet with us this week. He said he hadn't seen the scans yet but he had heard good things about them. I liked the sound of that! I mentioned to Steven that we would be coming to meet with the doctor again this week and he said, really matter-of-factly, "Well, I don't need to come. I'm not worried about the surgery." He really doesn't seem to be too worried. That makes me even more worried, is he not processing this? But this is the kid who hasn't missed a thing since he was little so he must understand. We've talked about it at great lengths. He has read books about surgery. He certainly seems to have a lot of faith. I don't know if he has faith in the doctor, in us, in God, in modern medicine or just a big mixture of all of it.
We are hoping to have lots of fun this week to make up for the week stuck in the hospital. I am struck tonight with how lucky we are to be in the hospital for such a short time with methotrexate. The nurse told me that some kids stay for 5 days and then go home for one and come back for the next round. She also told me that most kids need twice the amount of fluids that Steven does to be able to clear it. They call him a "fast clearer." How did we get so lucky? But then, we have cancer, so how did we get so unlucky? It's hard to wrap my mind around things, but in the end, the cancer is here, so I will try to be grateful for the little things that make it easier.
And part of what makes this easier is the love that so many people have shown to us. I don't always have time to thank you or respond to emails or comments, but everything you say and do is so appreciated.