Saturday, April 23, 2011

A better 24

This morning Steven was sitting up in his hospital bed when I opened my eyes, "Hey Dad, can I play the ipad? ... And I'm starving! Can I have breakfast?"

Awake, alert, and appetite. All good signs this was to be a better day than yesterday. Later in the morning he downed two donuts.

His methotrexate levels this morning were low enough that he could have his first blood transfusion. That definitely helped bring a little life and color back into him too (though I think the donuts worked better :) ).

My favorite part of the day was when we made our trek out to the fresh air in the "courtyard" area of the hospital. Steven said to me as we walked down the hallways, toting his IV pod along, and wearing his breathing mask, "I haven't really seen any other sick kids here." This was a little surprising to me. We passed a few rooms with open doors, "Ah, now I have." he said, as if feeling a little more like he wasn't alone. Maybe we need to get out in the hallways more.

When we made it to the courtyard, there happened to be a nerf football lying there. We played catch for a while. Steven was his old self. We looked for life flight helicopters. When it got too cold we went back in.

My parents came to visit us later on, and his other Grandma is with him tonight.

The rest of the day was spent in good spirits. I'm hopeful his methotrexate levels will take a dive tomorrow.

I felt a bit guilty though as I left the hospital. I get to go, but he has to stay, perhaps two more nights. He's a trooper!


  1. I'm so glad things are going a bit better! I know what you mean about feeling guilty for leaving--but you really need the recharge! I hope things continue to get better.

  2. Thanks for the post, Rob. It's good to hear that Steven is feeling better, after having such a hard day Friday.
    Hamburgers and donuts, Steven? Now, that's my kind of diet! Eat a few apple fritters for me!
    Thatcher's been in Primary Children's before, and our other kids sometimes say that they think it would be fun to stay at the hospital. You get to choose your food, play games, and watch tv! They think it sounds great. I tell them after two days, they'd want to be out of there! Hospital life is tough. A few years ago we were there on Thanksgiving, and the place was pretty deserted and lonely. I'm sorry you have to be there on Easter, but hope you get to come home really soon!
    Love you guys.

  3. Every step of progress is much appreciated. We are proud of you and your approach to each day. Everyone at work and at church ask about you each day and their prayers wer with us.

  4. Glad he is feeling better. I'm liking the Rob post action. Let Steven know we still need a tie-breaker on small world. Beware.

  5. It was so good to walk into his hospital room and see Steve sitting in the chair. He was smiling. He smiled alot last evening and this morning. I am so glad he is doing so well. I also saw some of the "other" patients. One of them is his second cousin (something removed?) who is just down the hall doing treatment for her cystic fibrosis for the next two weeks. The vest they use to treat her respiratory problems made her shake like she was on the back of a truck driving down a railroad track! It is good to be aware of others. Maybe he can visit Lorraine or Aunt Kathy down there next weekend. (I'm feeling they will spring him tonight!)