Friday, January 13, 2017

It's official--5 years cancer free post treatment

I've been looking forward to such a blog title for a long time and here we are.  Yay!  I am happy that this was our outcome, grateful for all the years we've had with Steven and for the many more to come, and humbled when I think of other cancer friends who weren't so lucky.

Yesterday we had the appointments.  Steven didn't have a scan as normal, they just took an x-ray of his chest.  They do this because they are less worried about recurrence at this point and it reduces the amount of radiation he is exposed to.  So I don't know if I can officially call these scans, but his blood work was totally normal and his lungs were clear.  We have every reason to hope for Steven to live a long life, cancer free.

We will continue these check-ups annually until he is 19 or 20, which will be 10 years out from treatment.  Hopefully we will feel as peaceful about those future check ups as we did yesterday.  It was a good day.

And because I don't post so often, let me update you on Steven.  He's getting tall--taller than me.  He's grown 6 centimeters since his appointment last year.  He's active and happy and will be getting a learners permit to drive soon.  (Yikes!)  He love music-- he plays the piano and the tuba, piano being one of his main pursuits.  He loves to read.  He plays ultimate frisbee with the high school club and just started church basketball.  He recently did his Eagle Scout project, a blanket drive for his favorite charity, Shriner's hospital.  We are in the process of getting him a new leg, this time the foot is very different--we'll post some pictures when that's done.

So happy times for Steven and I can also say that I am doing well.  I have felt better emotionally in the last few months than I have in years.  I finally feel like I am coming out of some of the sadness and anxiety that have come along with the circumstances of recent years.  I'm not perfect by any means, and I will probably never quite go back to those happy care free years before cancer, but I also feel like I am strong enough to weather (almost) any storm life throws at me.  Especially because I know I have such great support from friends, family, neighbors and God.

Thank you, everyone, for cheering us on!

Some pictures of Steven from the past year:

Steven with his soccer team.
At Arches National Park.
At Mesa Verde National Park (this was the Balcony House.  I heard someone behind me who was nervous about climbing the ladder say, "If he can do it with one leg, so can I."  It tends to be a theme surrounding Steven.

Steven and Andrew at Yellowstone, Steven with his guidebook, ready to advise us with geyser info.

The kids at Grand Prismatic Spring in Yellowstone.

Steven got his cycling merit badge this year and has loved his bike.  Here they are with some cousins in Grand Teton National Park.
Steven did his Eagle Project this month and collected and made fleece blankets for patients at Shriners Hospital.  
This picture was taken Wednesday as we work on the new leg for Steven.  This is the foot--he is so excited


  1. What wonderful news. I'm cheering and smiling inside and out. I think there is cheering on the other side as well. Aunt Alisa was such a support. It looks like you had an adventurous year. Go Steven!

  2. What wonderful news! I admire you so much and have loved following your blog.
    Your previous post was special too. I am glad to hear you are in a good place. It gives me hope. Thank you for sharing your experiences.

  3. Just stumbled on your blog, and loved reading through the stories. Thank you all your updates.
    My son Tyler is now 8 years cancer free. Incredible journey, and everyone needs to hear these stories. Keep spreading ther message, and my best to Steven!

  4. Hi Sonja,

    My name is Anuj Agarwal. I'm Founder of Feedspot.

    I would like to personally congratulate you as your blog Steven Battles Cancer has been selected by our panelist as one of the Top 75 Childhood Cancer Blogs on the web.

    I personally give you a high-five and want to thank you for your contribution to this world. This is the most comprehensive list of Top 75 Childhood Cancer Blogs on the internet and I’m honored to have you as part of this!

    Also, you have the honor of displaying the badge on your blog.