It's Thursday and Steven had more labs run today. His last ANC or neutrophil count was .2 or 200 and now they are 0. Steven said, "They can't be zero--there must be some in there." I don't know enough about it to say with all certainty, but the number they gave me was 0.0, so it seems kind of like zero to me. So, I guess school is out for tomorrow and Monday. I not feeling as dissapointed about it as I was last time--maybe because now I'm scared of infection!
We had another good day today. We got to wish Steven's cousin, James, a happy birthday. Steven wanted to surprise him with something and so we brought ballons and a cake. It made a huge difference in his attitude.
This afternoon I noticed a lot of hairs on his shirt and chair. He started tugging at his hair and sure enough, lots came out. He started to tell me about an idea, but it made him laugh so hard he couldn't spit it out. When he finally stopped laughing, he told me he wanted to play a trick on people where he acts really mad and starts pulling his hair out. We'll have to make a video--I'm sure we could use it in our family film festival somehow.
I love that he's finding a way to laugh through it all. We love you guys!
ReplyDeleteYou guys are really remarkable, Sonja. I love that Steven is able to find humor in this. Thinking of you and rooting for you all every day.
ReplyDeleteHurray for cousins!! Hurray for birthdays!! Hurray for funny videos!!!
ReplyDeleteSteven, I like you idea for a trick. I think it will surprise a lot of people. Sometimes I tell my kids that they make me so made I want to pull my hair out. They would be blown away if I really did it!
ReplyDeleteWell, Steven, your count can only go up from here, right? Or maybe I'm showing my ignorance? Can you have a negative count? At any rate, I'm glad you've had some fun things to smile about.
ReplyDeleteI can't wait to see that movie! What a creative kid...in even in the midst of all this. :)
ReplyDeleteyou could win the film festy for sure!
ReplyDeleteSounds like a funny video. Glad you had a good day today. We are praying for you all. :-)
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